UC Irvine (UCI) is one of the Institutions selected by the National Institute of Health to lead the All of Us Research Program in California, and Dr. Hoda Anton-Culver is the Principal Investigator at UCI. This Research Program is a national effort that aims at engaging one million or more participants nationwide to change the future of health.
UC Irvine has been very successful in leading this effort in California. More than 194,000 people have already joined across the country.
Dr. Anton-Culver, what is the All of Us Research Program?
The All of Us Research Program is led by the National Institutes of Health and part of the larger Precision Medicine Initiative. The goal is to engage one million or more volunteers living in the U.S. to improve health outcomes, fuel the development of new treatments for disease, and catalyze a new era of evidence-based and more precise preventive care and medical treatment. The mission of All of Us is simple: we want to speed up health research and change the future of health towards individualized care. Participants will share different kinds of health information over time to help build one of the largest, most diverse biomedical resources of its kind. Researchers will be able to access the data for a wide range of studies on different health conditions.
What is precision medicine?
Precision medicine is health care that is based on each individual. It takes into account factors like where you live, what you do, and your family health history. At the moment, health care is often one-size-fits-all. But imagine a future where your health treatments are tailored to you. This is called precision medicine. We can help make that future possible.
Why is UCI so successful in conducting the All of Us Research Program?
I think we are successful for a number of reasons. Our research team strongly believes in the importance of this research program as an unprecedented opportunity to change the future of health for our people, our community and our society. We created an amazing network of local healthcare providers, clinic staff members, and collaborators who are enthusiastically helping to promote the mission of the program in different ways. Our staff members are very well trained and mostly bilingual to overcome participants’ language barriers and cultural differences, and the positive experience of our participants is of paramount priority. We work together as a team to accomplish this important mission.
Why should someone consider joining All of Us?
People join for many reasons: to learn more about their health, to help improve the health of their communities and future generations, to help researchers find the best ways for people to stay healthy, and to help researchers one day create better tests and treatments. The longer a person stays involved with All of Us, the more they can learn about themselves and help speed up health research and medical breakthroughs.
Can anyone join?
Yes, all eligible adults, 18 years old or older can join.
What does participation involve?
People can create an account by visiting JoinAllofUs.org and provide their consent to get started. Then they’ll be asked to share their electronic health record and complete surveys. They can do all of this from their computer, tablet, or smartphone, or at one of our locations listed below. They will come to our clinics to have their physical measurements taken and to provide blood and urine sample. At completion of these steps, they will receive a $25 gift card. The All of Us Program will last for at least 10 years. We hope that participants will stay involved over time, responding to questionnaires and participating in other activities as they become available.
What do people need to do to participate at UCI?
The All of Us Research Program is important in Orange County because of the diversity of our population in this area, which includes Asians, Hispanics and other diverse populations including low socioeconomic people who are in general underrepresented in biomedical research.
What will you do to protect participant’s privacy?
We will take great care to protect participants’ information. Here are a few of the steps we will take: a) Information we have about participants will be stored on protected computers. We will limit and keep track of who sees the information; b) we will remove names and other direct identifiers (like your Social Security number) from the participants’ information and replace them with a code; c) Researchers must promise not to try to find out who the participants are. d) We will tell the participant if there is a risk to privacy because of a data breach. e) The All of Us Research Program has Certificates of Confidentiality from the U.S. government. This will help us fight legal demands (such as a court order) to give out information that could identify the participant.
Why is All of Us Research important for Orange County?
The All of Us Research Program is important in Orange County because of the diversity of our population in this area, which includes Asians, Hispanics and other diverse populations including low socioeconomic people who are in general underrepresented in biomedical research. This helps to know more about their health and their risk factors for developing diseases. If we want to do meaningful research for the entire country and not just certain subsets of communities, we’re going to need broad participation. We are particularly interested in groups that are currently underrepresented in biomedical research. As leaders of this research program it is our responsibility to make sure that “all of us” have the opportunity to participate in the program and make a difference. Therefore, we will do our best to engage our community, earn people’s trust and give them the opportunity to participate in this research program.
Where can someone learn more about the All of Us Research Program?
Our staff members will be happy to answer any questions you may have. Please call us at (949) 824-0282. You can also visit allofus.health.uci.edu to learn more about the program.
There are a number of frustrating things about a disease which presents itself differently in each of its patients. The first, quite obviously, is that the disease is present at all.
Next, perhaps, is that each conversation is marked by a tangle of personal history: for each individual has a background that informs how the disease will inhabit their lives and attempt to inhibit their futures. Lori Renaud, R.N., is no stranger to these frustrations, particularly when it comes to Parkinson’s Disease.
With symptoms like muscle rigidity, tremors, and changes in speech, for people suffering from Parkinson’s, it can be easy to feel as though easy living has come to an end. But Lori and her team at Acti-Kare refuse to give up. April marks the beginning of Parkinson’s Awareness Month, engaging the global Parkinson’s community to raise the antenna on a disease which impacts an estimated 7 to 10 million worldwide. Local events, social media pushes, walking and running events all hope to foster understanding and encourage those who are affected by the disease to share their stories.
Providing oversight, check-ins, in-home care, and exercise programs tailored to her clients’ individual needs, Lori incorporates “a healthy well balanced diet, a safe at-home environment, companionship, and the chance to maintain and improve socialization.” Most afflictions impacting the elderly force them behind the doors of their homes: and what were once cherished creature comforts become cramped, confined spaces. Lori’s team of professional caregivers are there to swing open the doors once more.
An industry leader in providing highly qualified, compassionate, and trustworthy caregivers, Acti-Kare is dedicated to in-home care, and Lori Renaud, R.N., is at the helm in South Orange County, steering her team towards excellence. Especially when it comes to senior care. Acti-Kare offers affordable in-home care - both hourly and live-in services - including transportation, meal preparation, personal care services, companionship from professionals who are screened, bonded and insured.
The knowledge that your loved ones are in careful hands is priceless, and the understanding that those hands are leading your loved ones to a safer, more independent lifestyle in their advanced years is immeasurable.
“I began Acti-Kare in April of 2015. Working in healthcare provided me with the opportunity to recognize the value and benefit of high-quality in-home care,” says Lori. “Too many seniors only have a life of existence, leading to isolation and depression.” Indeed, for those struggling with even minor memory or recovery issues, like a friend’s mother after she broke her hip, life becomes smaller and smaller. Until the house you raised your children in can start to feel more like a trap than a triumph.
Caregiving through memory loss, Alzheimer’s - offering both long-term care and hospice, Acti-Kare is committed to providing outstanding service. “Our caregivers go to the client’s residence, and we are daily achieving my goal of providing seniors the opportunity to have a life with meaning, and a more active, social, and independent lifestyle in a safe environment,” says Lori.
As a Registered Nurse, Lori takes each initial consultation herself, developing an individualized plan of care for every client, and checking back in regularly to provide personalized health assessments. The Acti-Vate Program takes customized care one step further, challenging the norm of an age-induced fatigue, and balancing mind, body and spirit to improve the wellbeing of clients holistically. The knowledge that your loved ones are in careful hands is priceless, and the understanding that those hands are leading your loved ones to a safer, more independent lifestyle in their advanced years is immeasurable.
“I can now sleep at night, knowing my mother is safe,” says Mary, a client from Laguna Beach. “Not only does my mother now have a constant companion, her laundry is taken care of, mail sorted - but if she wants to go out and run errands or meet a friend, her transportation is arranged.” Clients can still do their own grocery shopping; but if they’d rather not bother with the task of preparing and cleaning up afterwards, or perhaps are dealing with a restricted diet, “Acti-Kare caregivers can prepare meals that maintain a healthy diet, as well as monitor their daily nutritional needs to insure sufficient nutrition.” Unfortunately, a great many seniors fail to meet those demands, leading to frustration, and often, a heightened risk of illness.
“I educate the public on disease management and prevention,” says Lori. “But sometimes it takes the presence of a competent, compassionate caregiver to ensure that corners aren’t being cut on health in some of the most important years of your life.” Treating every client as if they were a family member of their own, Lori’s team is confident that their suite of senior care solutions will surpass your expectations for care - without committing to a long-term contract or minimum hour block of service.
A unique disease calls for a unique approach, and Lori’s team at Acti-Kare certainly aren’t strangers to the challenges that lie before them. Lori’s main frustration isn’t the tremors that come with Parkinson’s, or the lack of awareness surrounding diseases like it, but the cost to living facing people diagnosed with debilitating disease. “I want to keep people living independently: but mostly, just to keep people truly alive.”
Connect with Lori directly by calling (949) 397-6069 or visit www.actikare.com/southorangecounty
It’s impossible to say what we love most about our issue release parties, especially the most recent one at Villa Roma!
Situated in a shopping center just off La Paz at McIntyre (25254 La Paz Rd) in Laguna Hills, Villa Roma serves up amazing Italian and Argentine cuisine.
When it comes to deciding between hand battered and fried calamari, bufalo mozzarella appetizers, mini chicken, spinach and cheese empanadas, delicious meatballs and an amazing charcuterie boards of cured meats, cheeses and roasted peppers. Guests noshed on the aforementioned apps and raved about the flavor in every bite.
Villa Roma has an incredible selection of fine wines, great specials (on facebook), and the kind of attentive-yet-unobtrusive service you’re always hoping to get. Visit website: www.villaromarest.com for their menu and catering options. For reservations, call (949) 454-8585 or visit www.villarest.com
We know we’re lucky to have such great relationships with our amazing advertisers and that getting together is always a celebration each month! We feel lucky to do what we love, and hope that you enjoy Sorbet - a SoCal Senior Publication as much as we do!
Thursday, November 1, 2018 in Samueli Theater
Segerstrom Center for the Arts launches its 2018-2019 Chamber Series with the acclaimed Escher String Quartet on November 1, 2018 at 8:00 p.m. in Samueli Theater. Since its founding in 2005, the quartet has quickly garnered the reputation as one of the finest young string ensembles performing today. Their instrumental interplay, which combines technical precision with warmth and vitality, has reaped accolades nationally and abroad, and elicited invitations from Itzhak Perlman and Pinchas Zukerman to be the quartet-in-residence at their respective summer festivals. In a review, The Strad wrote, “…a level of individual technical precision and a collective musical purpose that is endlessly compelling … Sheer brilliance.” Quartet members include Adam Barnett-Hart and Danbi Um, violins; Pierre Lapointe, viola; and Brook Speltz, cello.
Single tickets start at $39 and are available at www.SCFTA.org, at the Box Office at 600 Town Center Drive in Costa Mesa or by calling (714) 556-2787. For inquiries about group ticket savings of 10 or more, please call the Group Services office at (714) 755-0236.
Segerstrom Center for the Arts presents Grammy® Award Lifetime Achievement Award Winner Ahmad Jamal for one performance only on October 19 at 8:00 p.m. The extraordinary night of music features the jazz legend and celebrated pianist-composer, who returns to the Center with his quartet: James Cammack, bass; Herlin Riley, drums; and Manolo Badrena, percussion.
Jamal’s 70-year career spans many eras: big band, the Parker/Gillespie era, the electronic age, etc. He is one of the most sampled composers and recording artists in the world. He is still recording and producing young artists, releasing Jamal Plays Jamal in 2015 and his latest album Marseille in 2017, both available from his web site www.ahmadjamal.com. Ahmad Jamal has been a Steinway Artist for over a half century.
Single tickets start at $49 and are available at www.SCFTA.org, at the Box Office at 600 Town Center Drive in Costa Mesa or by calling (714) 556-2787. For inquiries about group ticket savings of 10 or more, please call the Group Services office at (714) 755-0236.
In a few weeks, you’ll be making important choices about next year’s health plan. As you consider your options, think about Monarch HealthCare®, a part of OptumCare®.
With more than 25 years of caring for local families and seniors, Monarch HealthCare has an extensive network of board-certified primary care and specialty doctors working independently in the greater Orange County area. This includes more than 750 family, internal and general medicine doctors who coordinate care with about 1,750 medical specialists.
Best of all, Monarch Healthcare doctors take private and employer health plans, as well as traditional Medicare, Medicare Advantage, “retiree” and supplement plans. They are providers for AARP, Aetna, Alignment, Blue Cross, Blue Shield, Humana, One Care, SCAN and UnitedHealthcare health plans.
Better Access to the Care You’re Looking For
Choosing a Monarch HealthCare doctor gives you the choice and ease of a PPO with the savings and extra care you’d expect from an HMO. You’ll find it easier to get the care you need because of our:
Extra Services to Keep You Well
Only Monarch HealthCare offers dedicated teams of doctors, nurse practitioners, registered nurses, certified diabetes health educators, social workers, pharmacists, and other health care professionals to work with your doctor and help you meet health goals.
Monarch HealthCare attracts board-certified doctors and specialists, and many speak additional languages besides English, including Spanish, Vietnamese, Mandarin, Farsi and Arabic. For a free directory of Monarch HealthCare Doctors, with phone numbers, office locations, languages spoken and more, call Customer Service at (877) GO-MONARCH or (877) 466-6627. TTY: (800) 735-2922.
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Find addresses, one-touch calling and turn-by-turn driving directions to doctors, urgent care, labs and 24-hour pharmacies and more. Download it on iTunes or GooglePlay.
November 2, 2018 in Segerstrom Hall
Following the demand of fans and rave reviews, actors and musicians LEA MICHELE and DARREN CRISS announced today that they will continue their wildly successful LM/DC Tour on the West Coast – including their Segerstrom Center debut on Friday, November 2 at 7:30 p.m. in Segerstrom Hall.
Michele last hit the road in the spring of 2017 for a string of sold-out shows on her Intimate Evening With North America tour. Criss most recently released a five-track indie EP titled Homework, his first solo project in more than seven years. It debuted at #1 on Billboard’s Heatseekers Chart, while SiriusXM described it as a “nice hybrid of early Elton John and Ben Folds.”
Tickets to the LM/DC Tour start at $39 and are available online at SCFTA.org, at the Box Office at 600 Town Center Drive in Costa Mesa or by calling (714) 556-2787.
October 9 - 14, 2018
Back by popular demand, Beautiful – The Carole King Musical returns to Segerstrom Center for the Arts for one week only October 9 – 14, 2018 in Segerstrom Hall.
From Producers Paul Blake and Sony/ATV Music Publishing, the Tony® and Grammy® Award-winning musical tells the inspiring true story of Carole King’s remarkable rise to stardom, from being part of a hit songwriting team with her husband Gerry Goffin, to her relationship with fellow writers and best friends Cynthia Weil and Barry Mann, to becoming one of the most successful solo acts in popular music history. Along the way, she made more than beautiful music, she wrote the soundtrack to a generation.
Tickets to Beautiful—The Carole King Musical start at $26 and go on sale Sunday, August 26 at 10 a.m. and will be available online at SCFTA.org, by calling (714) 556-2787 and at the Box Office at 600 Town Center Drive in Costa Mesa.
The Australian Pink Floyd Show
September 6, 2018
The 2018 Australian Pink Floyd Show Tour is a celebration of Pink Floyd's iconic musical heritage & stage shows. 30 years of dedication have gone into perfecting the craft of honoring Pink Floyd, the 2018 tour is the culmination of all those years & thousands of shows. The set list will represent the best of Pink Floyd’s music from every era of the band’s history in our most spectacular show featuring state of the art lighting, sound, lasers & inflatables.
Beckman Arts & Science Family Festival
September 15, 2018
George & Julianne
Arts + Science = Family Fun at the first Beckman Arts and Science Family Festival coming to the Julianne and George Argyros Plaza at Segerstrom Center for the Arts. FREE entertainment, hands-on activities for the curious of all ages, fascinating and informative exhibits plus imagination-expanding workshops will fill the day from 10:30 a.m. to 2:30 p.m. Guests will be enthralled by the incomparable Doktor Kaboom!, Aman Dance, Phantom Projects Theatre Group, Dino Encounters and The MoonRays. And the Center’s own over-sized creative building kits will inspire and challenge budding architects and engineers. All activities combine elements of science, technology, engineering, arts and mathematics (STEAM). This day of discovery, experimentation and fun is made possible through the Center’s partnership with the Arnold and Mabel Beckman Foundation.
Beautiful - the Carole King Musical
October 9 - 14, 2018
BEAUTIFUL – THE CAROLE KING MUSICAL tells the inspiring true story of King’s remarkable rise to stardom, from being part of a hit songwriting team with her husband Gerry Goffin, to her relationship with fellow writers and best friends Cynthia Weil and Barry Mann, to becoming one of the most successful solo acts in popular music history. Along the way, she made more than beautiful music – she wrote the soundtrack to a generation. Featuring a stunning array of beloved songs written by Gerry Goffin and Carole King, and Barry Mann and Cynthia Weil, including “I Feel The Earth Move,” “One Fine Day,” “(You Make Me Feel Like) A Natural Woman,” “You’ve Got A Friend” and the title song, BEAUTIFUL has a book by and Tony® Award nominee and Academy® Award-nominated writer Douglas McGrath, direction by Marc Bruni, choreography by Josh Prince.
Ahmad Jamal Quartet and Shahin Novrasli Kenny Barron Quintet • Kurt Elling Christmas Branford Marsalis Quartet and Yuko Mabuchi Trio • Catherine Russell
Jazz has been part of the Center’s repertoire for more than 30 years, and has helped to establish Orange County’s thriving music scene. NEA Jazz Masters Ahmad Jamal, Branford Marsalis and Kenny Barron bring power to the Center’s 2018-2019 Jazz Series line-up. Making their Center debuts are the astonishing young Azerbaijani pianist Shahin Novrasil performing with Jamal, and the Yoko Mabuchi Trio with Marsalis. Vocalist Catherine Russell makes her Center debut and Kurt Elling entertains with a special holiday set.
Single tickets go on sale approximately eight weeks prior to individual engagements. Visit the Center’s website, www.SCFTA.org for more information. For inquiries about group ticket discounts, call the Group Services office at (714) 755-0236.